There aren't many resources available for Lyme patients worldwide, but there are a few in the USA. Thanks to Lisa over at What Is Lyme for this comprehensive list. She's a star & an asset to Lyme sufferers worldwide. If any of you know of any other resources, please let me know and I will update this page. Also, please let me know if there are broken links.
Lyme Tap – The Lyme Test Access Program (Lyme-TAP) is a nationwide patient assistance program to provide assistance for initial Lyme-related lab tests to patients who demonstrate true financial need.
Anyone diagnosed with Lyme disease between ages of 3-25 and can demonstrate a qualified financial need.
Lymies Seeking Roomates
Make A Wish
Click on this link to go to “Make a Netwish”, a site to get monies, if you are in need.
Clinic of Angels
Click on this link to go to “Clinic of Angels”, a site to get monies, if you are in need.
http://www.clinicofangels.org/ and click on the Financial application form on the left of the screen.
Help With Medicine Costs
Providing Patients Access to the Medicines They Need
Bridges To Access
The GSK program providing low cost or no cost medications for non-medicare patients or for people who do not have prescription coverage. It is a great program for Malarone and Mepron.
ClinicalTrials.gov is a registry and results database of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial’s purpose, who may participate, locations, and phone numbers for more details. This information should be used in conjunction with advice from health care professionals. Use the search tool, there seem to be a few trials recruiting for Lyme Disease patients.
Clinic Of Angels
The Clinic of Angels is a 501(c) 3 non-profit organization founded in 2005 by Michael Cichon MD. Dr. Cichon, a board certified Internal Medicine and Infectious Disease physician has practiced in the Tampa Bay area for over 30 years. His purpose in starting this organization was to help chronically ill patients by providing financial resources to help in their medical care.
http://www.clinicofangels.org/Clinic%20of%20Angels%20Application%20for%20Services%20with%20income%20chart%20New%20(2).pdf (application form)
Co-pay programs provide financial assistance for certain health care costs to patients who qualify financially and medically.
Discount for Condensed Cowden Support Program via Nutramedix -
http://www.nutramedix.com/contact-us.asp (phone numbers)
The Nutramedix company more than a year ago offered for a while, free Condensed Cowden Support Programs (CCSP) to select Lyme patients. Nutramedix no longer offers that but if someone with severe Lyme disease &/or co-infections wants to go on the CCSP but can’t afford it, they can contact Nutramedix to discuss their financial situation & request a discount based on financial need.
Discount Drug Card Programs
A list of many state and other “savings card” programs to help with cost of medications.
http://www.gsk-access.com/index.html (home page)
http://www.gsk-access.com/medicines/medicine-list.html (list of medicines)
GSK Access is a GlaxoSmithKline patient assistance program. It provides GSK prescription medicines—at no charge—to qualified patients who are enrolled in a Medicare Part D Prescription Drug Plan.
L.E.A.P. – Financial Assistance Program
There is very little financial assistance available for children and adults suffering with Lyme disease. We at L.E.A.P. are attempting to raise funds for this very purpose for patients in Arizona and across the United States. Our program consists of a financial assistance application which is confidentially reviewed and verified during the approval process. When patients are approved for assistance, all funds disbursed on their behalf are sent directly to their providers/creditors after insurance payments and balance verification. We make sure that grants and donors’ contributions are used appropriately.
In addition, L.E.A.P. has a partnership with Amazon.com. Amazon makes a donation to L.E.A.P each and every time a purchase is made using this link: http://www.amazon.com/?&tag=lymeeducation-20&camp=15345&creative=331689&linkCode=ur1&adid=06609TZGXCZ7F7YH5GDM& Pass this on!
Lyme Aid 4Kids
The LymeAid 4 Kids (LA4K) fund began in 2004 and has helped children all over the U.S. and in Canada. Developed with the help of author Amy Tan, the fund is for children who do not have/receive insurance coverage for Lyme disease treatment for children and have economic difficulties. Donations can be made on-line to LDA help this LA4K fund as there are so many applicants, the fund does run out of money frequently.
Help With Pet Bills
Modest Needs offers three main types of grants: Self-Sufficiency Grants, Back-to-Work Grants, and Independent Living Grants. The grants we offer at Modest Needs come with no strings attached and do not ever have to be repaid.
Modest Needs’ grant programs are designed PRIMARILY to assist individuals and families who generally are able to pay their monthly bills with no help from anyone, who don’t qualify for conventional types of social or charitable assistance, and who are facing a financial crisis because they’ve encountered a single, unexpected expense they just can’t afford on their own.
Of course, we also offer grants that are designed to assist people who are in the process of returning to work, persons who need help to afford accessibility equipment, and small non-profit organizations. But, in general, Modest Needs just does not have the resources to assist individuals or families who are homeless, have no regular income of their own, or need / receive ongoing help to afford the basics.
Partnership for Prescription Assistance
The Partnership for Prescription Assistance helps qualifying patients without prescription drug coverage get the medicines they need through the program that is right for them. Many will get their medications free or nearly free. The Partnership for Prescription Assistance will help you find the program that’s right for you, free of charge. Remember,you will never be asked for money by a PPA Call Center representative, or on this Web site.
This is a Patient Assistance Programs (PAPs). Programs offered by pharmaceutical companies to help those most in need gain access to their medications at no or low cost. Each program has varying financial and insurance guidelines – when in doubt, call the program. To find the specific PAP information for a specific drug click on the list (on web page). You will then be taken to a listing of all the programs available for that medication.
This webpage, also part of Needy Meds, is specifically for those without insurance or unable to pay for a visit with a physician, NeedyMeds has compiled a nationwide list of free, low cost, and sliding scale clinics. *Granted these are not LLMD’s specifically, probably mostly Family Practitioners, Infectious Disease, etc, basically doctors that have general knowledge about Lyme.
Patient Advocate Foundation (Co-Pay Relief)
The Patient Advocate Foundation (PAF) Co-Pay Relief Program (CPR) currently provides direct financial support to insured patients, including Medicare Part D beneficiaries, who must financially and medically qualify to access pharmaceutical co-payment assistance. The program offers personal service to all patients through the use of call counselors; personally guiding patients through the enrollment process.
A program helping people get prescriptions at a much lower price. So if you are taking antibiotics, iv’s, etc, they could be a great resource to look into. From their website “We assist individuals who need to take prescription medications, yet lack the income to afford the monthly expense. Since our founding in 2001 we have assisted thousands of uninsured and underinsured individuals throughout the United States in obtaining prescriptions directly from the manufacturer.”
Information about free medications. Find information about free and low cost medicine programs and other ways to manage your medication costs. Patient assistance programs are run by pharmaceutical companies to provide free medications to people who cannot afford to buy their medicine. RxAssist offers a comprehensive database of these patient assistance programs.
RxHope is exactly what its name implies…a helping hand to people in need in obtaining critical medications that they would normally have trouble affording. We act as your advocate in making the patient assistance program journey easier and faster by supplying vital information and help.
Wish Upon A Hero
Wish Upon A Hero is a website that brings together people to help grant wishes big and small. No wish is too large, no hero is too small.
Sponsor a child for their birthday
Financial Assistance for Lyme Disease Patients